Tuesday, October 27, 2015

EL's Seizures Keep Returning


October 2015 - Before her 5th MRI
It has been awhile since I gave an update on our daughter, EL. Generally, she has been doing well since my last update in February. In fact, her latest MRI checkup was earlier this month and it showed no changes to the size of her pituitary tumor. That was great news to hear, and she won't need to have another MRI until a year from now. However, in March, her seizures began to increase and, since then, we have had to boost her medication at 3 different times.

Most of the time, she has had mild seizures that consist of her staring and "blanking out" for a short time, not responding to us, and then in a state of confusion for several minutes after. But, occasionally, she will have a full-blown grand mal seizure complete with a red face, drooling, and strong convulsions.  She has always done well for a month or two after each med increase, but the  seizures eventually return.

Last night, EL had a hard seizure around 8:00 p.m. while watching TV. Then, she had another one this morning around 10:00 a.m. while we were doing some school work. The seizures were only 14 hours apart. After consulting with her Neurologist today, she wants to have labs drawn this week to check the levels of her medication. Then, we are also scheduled for a sleep-deprived EEG next week. Depending on what they find out, she may do well with an additional medication to help control the seizures. I hope so.

It is so hard to watch my child having a seizure. I have become more used to them in the past two years, but it still bothers me to see them; and, I feel like I don't want to leave her side because we never know when another one will suddenly happen. Her meds will not be increased again until after her EEG next week. So, as you think of her, keep her in your prayers this week - that she will not get hurt in the midst of any more seizures, for my anxiety level during the waiting process, and that the tests will show what needs to be shown.

Philippians 4:6 - Be anxious for nothing, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. (NASB)



4 comments:

  1. We will be praying for her and the rest of the family! I can only imagine how hard it is on your, as a mother. I am here if there is anything you need. We can watch J anytime; if you need to go to appointments or for a stay at the hospital and want me to help me out, let me know!!

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