Friday, November 6, 2015

Update on EL's Seizures

Last week, I told you that EL's SEIZURES KEEP RETURNING. So, we took a trip to St. Louis on Wednesday to have a sleep-deprived EEG. Her last one was 2 years ago, so they wanted to check for any changes and see if an additional medication would help to control her seizures.

I had to stay up with her until Midnight on Tuesday night before the test. Then, I had to wake her up again at 5:00 on Wednesday morning, and keep her awake during the car ride to St. Louis. After getting her prepped (which she hated), her testing finally began around 3:00 p.m. and she was able to fall asleep quickly (which worked out great to get the information needed.)

Today, the doctor's office called with the EEG results. It was considered abnormal, but it didn't have any significant changes compared to her previous EEG. That is good news. With this information, they are not going to add an additional medication. Instead, they have once again increased the dosage of her current meds, and we will see how things go. (Apparently, her bloodwork showed her medication level was still lower than it should be, so hopefully this will be the last increase needed... at least for awhile.)

We are grateful for the prayers you have said for our sweet girl. Our God is good to listen to our prayers, and to provide the strength we need in difficult times.


4 comments:

  1. I hope the medication increase helped. I'll continue praying for El. We are currently trying to get Bethany into an Epidiolex (CBD oil/medical marijuana) based medication clinical trial for seizures.

    ReplyDelete
    Replies
    1. Thanks, Sylvia. The med increase has helped. The last seizure she had was on New Year's Eve.

      Delete

Please leave a comment. I would love to know your thoughts! (NOTE: It may take a little while before your comment shows up, due to all comments being moderated. Advertisements or spam will not be approved for publication.)