Last week, I told you that EL's SEIZURES KEEP RETURNING. So, we took a trip to St. Louis on Wednesday to have a sleep-deprived EEG. Her last one was 2 years ago, so they wanted to check for any changes and see if an additional medication would help to control her seizures.
I had to stay up with her until Midnight on Tuesday night before the test. Then, I had to wake her up again at 5:00 on Wednesday morning, and keep her awake during the car ride to St. Louis. After getting her prepped (which she hated), her testing finally began around 3:00 p.m. and she was able to fall asleep quickly (which worked out great to get the information needed.)
We are grateful for the prayers you have said for our sweet girl. Our God is good to listen to our prayers, and to provide the strength we need in difficult times.
Good to hear an up-date!ReplyDelete
Always praying for her and you.ReplyDelete
I hope the medication increase helped. I'll continue praying for El. We are currently trying to get Bethany into an Epidiolex (CBD oil/medical marijuana) based medication clinical trial for seizures.ReplyDelete
Thanks, Sylvia. The med increase has helped. The last seizure she had was on New Year's Eve.Delete